Benefit to Raise Money for Financial Hardship

As you know or may be seeing there are extensive hospitalizations, surgeries, medical supplies and therapies that come with exstrophy.  Of course there are different degrees of exstrophy and, therefore, different degrees of financial investment that comes along with it.  We have been EXTREMELY lucky in that my health insurance has covered the majority of our medical expenses related to my daughter's condition.  There have been some times when insurance was sparse and quibbled about what they would cover, but we have been luckier than some in that, while my daughter's condition did cause financial stress, we have never been in a situation where we experienced true hardship.  Here is a story of one benefit held for a little girl born with cloacal exstrophy.  Her condition has caused the family to enter financial hardship.

http://brick.patch.com/articles/pba-basketball-game-to-benefit-brick-girl-with-rare-condition